Welcome
Welcome to The Freya Foundation. Our aim is to raise awareness for the condition called PDH, or pyruvate dehydrogenase deficiency complex.
As Freya’s parents, we had no understanding of this condition and were left to find out more information on our own. This is why we have set up The Freya Foundation.
The Freya Foundation's mission is to develop and share information and advice about PDH. By working with doctors and other medical specialists we hope to find out more about PDH including the diagnosis, the different treatments and managing the condition. Thanks for all your love and support
Kelly, Dave, Freya and Freddie
What is PDH?
Pyruvate dehydrogenase deficiency is characterized by the buildup of a chemical called lactic acid in the body and a variety of neurological problems. Signs and symptoms of this condition usually first appear shortly after birth....
LATEST EVENT!
10 Year Anniversary Challenge
We couldn't let a little thing like turning 10 go buy without a crazy challenge and some celebrations so we thought we would share this years challenge....
Kelly (Freya's Mummy) will cover the distance of 10 marathons in 10 months (ish), the equivalent of 262.188 miles, this will start by covering miles over shorter distances, turning into longer runs and culminating with a full Marathon distance on September 21st 2024.
Kelly has already completed the equivalent of 2 marathons and continues to train hard, which is a great start.
She is of course not doing this alone and has managed to persuade a couple of the trustees of The Freya Foundation to take part as well (not sure they knew exactly what they were signing up for ).
Would you like to take part?
Everyone is welcome to take part in as much or as little as you would like, either virtually or in person pounding the streets of Bristol, just get in touch.
We are so grateful for everyone's support over the last ten years, and we are looking forward to the next 10.....
JOIN US
Please join and follow us on Facebook and keep up to date with the latest news and pictures.
SUPPORT US
If you are taking part in a fundraising event and are looking for someone to support please contact us as thefreyafoundation@gmail.com where we can help with a Puffin Pack including sponsorship forms, a t-shirt, wrist band and sticker.
LATEST NEWS
FUTURE EVENTS
Proud to be sponsored by the national lottery
A massive thank you to the National Lottery who have helped fund this years meet up. This enables us to continue supporting the families by offering a chance to get together share experiences and information. The families are very much looking forward to it.